The Dysautonomiacs Blog

I found this group tonight: http://thedysautonomiacs.blogspot.com/p/what-is-dysautonomia.html
Seems pretty cool. If you're interested in reading other blogs about dysautonomia, I recommend it.

Picture: Signs you're spending too much time in the house...

Breakthrough!

Ok, so in the last few weeks I've been seeing a "super" doctor over at Jefferson in Philly. He changed my meds around and it has made a HUGE difference. My blood pressure is much better, I'm not as dizzy, I haven't passed out (or even been near it). The only problems are that I am still exhausted all the time and I am very weak. My muscles have started to shrink in my legs, so I'm starting physical therapy at home to get my muscle mass back. Its hard, but I hope its worth it. Overall I feel better, but not well. Kind of feels like how you feel the day after you have a really tough workout and you haven't done much in a while. Very tired, weak, and hurt all over. Its not perfect, but its a step in the right direction, and therefore it gives me hope.