
"Three options exist when you become ill:
1) Deal with it, adapt, and keep living your life
2) Put your life on hold while you try to take care of the illness, assuming that you will rejoin the ranks of the living once you’ve dealt with it
3) Curl up in a ball and stay there"
I know that personally I've tried all three of these. I know we're all supposed to aspire to do #1, but some days its all just too overwhelming and all you can do is lie in bed and try to sleep until tomorrow in hopes that it will all go away. Some days I wish that this was all just some horrible dream, that I would wake up again and be me. The girl who I used to be, in the body that I used to take for granted.
I think the key to dealing with a disability is to learn to adapt. Learn what to spend your energy on, learn how to get more energy, and learn what to let go. For instance, this Christmas I did more than usual. I wrapped last minute presents and walked loads of boxes and bags down to the family room. I organized the presents and made everything presentable. I cleaned up the house, ran a load of laundry, decorated cookies. I played "elf" with the family retrieving presents from the tree and delivering them to family members in the den. I then helped to clean up the wrappings, brought my new presents to my room, gave the dogs their pills, etc. The list of little things adds up fast. Now because I did all that, I probably won't be going "after Christmas" shopping tomorrow with my mom and sister, for me thats okay. As much as I want to do that, its not worth giving up my place as the family "elf" or helping to make the holiday special.
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