On days like today lyrics keep me going... Maybe they'll help you too...

It’s an uphill climb 
But it’s all you know
So you spin your wheels
And dig your heels and down you go 

So predictable
But it’s not your fault
How can you expect to do your best
When you’re scared to fall

Cause the pain is real
But you will survive
That’s how you know you’re alive

Cause it’s Okay Now, Hey Now
You can let go
That’s when you 
Find out, Find out
Everybody knows
That there just 
Aint no, Aint no
Easier way out
I know it might not look that way
But You’re gonna live to fight another day
 - Brandon Heath "Fight Another Day"


I'm not really into Christian music, but he came to my school and I really like his music. His lyrics are hit and miss, but this song is great!

Been a while, which is good, but...

So I had been doing well. Well, POTS wise at least. I developed migraines which we are testing for and seeing a neurologist for (apparently a normal sign of POTS). I am taking Imatrex for the bad ones which is very helpful, but I just started Topamax to try to prevent them (verdict is still out on that). I basically have a headache everyday of whatever level which is manageable, but sucks.

As icky as it is to talk about, for those of you who have POTS who read this, I feel I should mention that my body temp issues are out of control right now. Not sure if its the weather or what, but if you are experiencing the same thing, ur not alone. Hot flashes are in full swing in fall!

I'm getting a serious case of the stir crazies... I haven't left the house for anything other than doctors with the one exception of a few hours last Saturday for a wonderful apple and pumpkin picking trip. I am very glad I got to do that since I don't think I'll be able to do any of the other things I wanted to do this fall and most of them have an end date. The PA Renn Faire, Pennhurst Asylum Haunted House (friends work here), Eastern State Penn Haunted House (I used to work here), The Mummy Exhibit at the Franklin Institute, to name the tops on the list. I was supposed to go to two of them this weekend, but no one wanted to go with me. That seems to be a new issue for me, I feel like going out, but don't feel up to going out alone, and no one wants to or has time to do things with me. Go figure, people have lives. :op

Well here are a few pics from my day with the apples and pumpkins. :)

 Riding to the orchard... 

ps. Can you tell I was having a hot flash? A tank top on a 56 degree day? ha!

And the orchard...

5:54... I would rather be sleeping...

So its almost 6am and I can't sleep. I am in very bad pain (probably because changing weather due to it becoming fall and rain). I have tried tylenol, tramadol, heating pads, massage, relaxation techniques, meditation, tai chi (although I only remember about 3 min of it), hot camomile tea, a warm shower, and nothing is working. I now have taking my sleeping pill 6 hours ago, so soon it will be wearing off. This is one of those things that is frustrating about my sickness. I have chronic sleeping problems, but pills don't seem to help some days (like today). Does anyone else have problems sleeping with POTS? Any ideas? Is anyone even reading these?