Price I pay for a great Family Day!

Blood Pressure: 109/65
Heart Rate: 54

Today I feel like crap again. At least yesterday was fun. We went to the beach and (even though it was rainy and gross out) had an amazing time! I walked about a mile of boardwalk and splashed in the water for a little bit. I was a good girl and skipped the custard for a chocolate covered banana in my attempt to avoid dairy (mental note, the banana on a stick is very awkward to eat in public). And I pigged out on crabs and shrimp!  It was a great day, just now have to pay the price.

Setbacks.

On days like today, when I had plans to be with friends and have to cancel due to not feeling well, its hard to stay positive. But I just keep reminding myself that it could be worse. Tomorrow is the 26 year anniversary of my adoption. We call it "Family Day." This year we're going to Ocean City, MD for a family beach day to celebrate. Best case scenario, I have a fun filled day on the boardwalk and in the beach with my family and get to pig out on crabs. Worst case scenario, I lie on the beach all day and pig out on crabs anyway. But, a beach day with POTS isn't the same no matter how well it goes. I started hydrating today, need to wear my big floppy hat and slather on way more sunscreen than ever before, and I probably can't go into the water for too long or else my Raynaud's will act up. Again, I need to just stay positive and remind myself of the good things in life on those bad days. Crabs for dinner, beautiful beach views, and time with my family. Those are the things that really count.

Posts belated

I haven't been posting lately and for good reason. I'm doing a lot better on my new treatment! Florinef, B vitamins, Lunesta, Paxil, Midodrine. My cocktail of medications combined with high salt intake, high water intake, and more exercise has made a huge difference in how I feel and my abilities to function more normally. That coupled with the beautiful June weather and I haven't been spending too much time in bed with my computer. I don't know if anyone is actually reading these posts, but if someone is who has POTS, there is hope. I know it seems hopeless when you can barely get out of bed without passing out, when you feel like you can't do anything to get better, but don't lose hope. It is one thing we still have, no matter what! While I could stay here an write to you a post that seems like a song from a Broadway musical about not giving up hope, instead I'm going to go out in the sunshine and take a walk. Happy day to you!